Testing Baby

The Transformation of Newborn Screening, Parenting, and Policymaking

By Rachel Grob | Publisher: Rutgers University Press

About the book

Within forty-eight hours after birth, the heel of every baby in the United States has been pricked and the blood sent for compulsory screening to detect or rule out a large number of disorders. Newborn screening is expanding rapidly, fueled by the prospect of saving lives. Yet many lives are also changed by it in ways not yet recognized.

Testing Baby is the first book to draw on parents’ experiences with newborn screening in order to examine its far-reaching sociological consequences. Rachel Grob’s cautionary tale also explores the powerful ways that parents’ narratives have shaped this emotionally charged policy arena. Newborn screening occurs almost always without parents’ consent and often without their knowledge or understanding, yet it has the power to alter such things as family dynamics at the household level, the context of parenting, the way we manage disease identity, and how parents’ interests are understood and solicited in policy debates.

Editions of Testing Baby

Hardcover
ISBN 9780813551357
PDF
ISBN 9780813552026

Read an Excerpt

Within forty-eight hours after birth, the heel of every baby in the United States has been pricked and the blood sent for compulsory screening to detect or rule out a large number of disorders. Newborn screening is expanding rapidly, fueled by the prospect of saving lives. Yet many lives are also changed by it in ways not yet recognized.

Testing Baby is the first book to draw on parents’ experiences with newborn screening in order to examine its far-reaching sociological consequences. Rachel Grob’s cautionary tale also explores the powerful ways that parents’ narratives have shaped this emotionally charged policy arena. Newborn screening occurs almost always without parents’ consent and often without their knowledge or understanding, yet it has the power to alter such things as family dynamics at the household level, the context of parenting, the way we manage disease identity, and how parents’ interests are understood and solicited in policy debates.

Frequently Asked Questions

What is Testing Baby about?

Within forty-eight hours after birth, the heel of every baby in the United States has been pricked and the blood sent for compulsory screening to detect or rule out a large number of disorders. Newborn screening is expanding rapidly, fueled by the prospect of saving lives. Yet many lives are also changed by it in ways not yet recognized.

Testing Baby is the first book to draw on parents’ experiences with newborn screening in order to examine its far-reaching sociological consequences. Rachel Grob’s cautionary tale also explores the powerful ways that parents’ narratives have shaped this emotionally charged policy arena. Newborn screening occurs almost always without parents’ consent and often without their knowledge or understanding, yet it has the power to alter such things as family dynamics at the household level, the context of parenting, the way we manage disease identity, and how parents’ interests are understood and solicited in policy debates.

What core themes, tropes, or subjects are explored in Testing Baby?

Medicine and Nursing > Medicine / Healthcare: general issues / topics > Medicolegal issues

Where can I read a sample of Testing Baby?

You can read an official preview of the few pages here https://www.book2look.com/book/9780813551357

Is Testing Baby part of a series, and can it be read as a standalone?

Yes it is a part of series Critical Issues in Health and Medicine

Who is/are the Author/s of the book Testing Baby?

Rachel Grob

Who is the Publisher of the book Testing Baby?

Rutgers University Press

What are the ISBN numbers for the physical and digital editions?

Testing Baby is available as hardcover(ISBN 9780813551357) and pdf(ISBN 9780813552026)

Where can I buy Testing Baby online or support local independent bookshops?

You can buy Testing Baby from below

Where can I buy Testing Baby?